Useful links

All links correct at time of publishing. Please note that these are links to external contacts and so do not express the thoughts and opinions of St Joseph's Hosipce.

A

www.ampainsoc.org  
The American Pain Society is a multidisciplinary community that brings together a diverse group of scientists, clinicians and other professionals to increase the knowledge of pain and transform public policy and clinical practice to reduce pain-related suffering.

http://www.ageuk.org.uk/  
Age UK is the country's largest charity dedicated to helping everyone make the most of later life.

B

http://resources.buildingmaterials.co.uk/insulation-guide-elderly/
Building materials website with a useful home insulation guide for the elderly. 

C
www.cqc.org.uk  

The website of the Care Quality Commission who check whether Hospitals, Care homes, GPs, Dentists and Services in your home are meeting national standards.

https://www.capc.org/USA website
The Center to Advance Palliative Care (CAPC) is a national organization dedicated to increasing the availability of quality palliative care services for people facing serious illness. 

D

http://deathcafe.com/
At a Death Cafe people, often strangers, gather to eat cake, drink tea and discuss death. Our objective is 'to increase awareness of death with a view to helping people make the most of their (finite) lives'.

http://www.dyingmatters.org/
Dying Matters is a coalition of 30,000 members across England and Wales which aims to help people talk more openly about dying, death and bereavement, and to make plans for the end of life.

E

http://www.e-lfh.org.uk/home/
e-LfH is a Health Education England Programme in partnership with the NHS and Professional Bodies providing over 30 e-learning projects in partnership with medical Royal Colleges and other professional healthcare organisations.

http://www.ehospice.com/uk/en-gb/home.aspx
ehospice is a globally run news and information resource committed to bringing you the latest news, commentary and analysis from the world of hospice, palliative and end of life care.

http://www.esrsupport.co.uk/nlms/login.html
Electronic Staff Record (ESR) programme is a Department of Health (England) led initiative, providing an integrated training platform providing national, quality assured eLearning for all healthcare professions.

G
www.growthhouse.org
USA website Growth House, Inc., gives you free access to over 4,000 pages of high-quality education materials about end-of-life care, palliative medicine, and hospice care, including the full text of several books. We provide education both for the general public and for health care professionals.

www.goldstandardsframework.org.uk  
The website of the National Gold Standards Framework Centre (GSF) in End of Life Care - the leading providers of end of life care training for generalist frontline providers in the UK.

https://www.gov.uk/cold-weather-payment
Gov.UK website detailing cold weather payment information for people who are claiming certain benefits. 

https://www.gov.uk/the-warm-home-discount-scheme/overview
Gov.UK website detailing the warm home discount scheme

H
http://www.hospiceuk.org/
Hospice UK is the national charity for hospice care. They champion and support the work of more than 200 hospices across the UK, so that they can deliver the highest quality of care to people with terminal or life limiting conditions, and support their families.

www.healthtalkonline.org
Information on a range of illnesses and other health-related issues from seeing and hearing people's real life experiences. Thousands of people have shared their experiences on film to help others understand what it’s really like to have a health condition such as breast cancer or arthritis.

M

http://www.macmillan.org.uk/Home.aspx 
Macmillan Cancer SupportCancer is Europe's leading cancer information charity. Over 4,500 pages of up-to-date cancer information, practical advice and support for cancer patients, their families, carers and friends. There is a section for healthcare professionals that includes e learning and a selection of videos and other resources. 

http://www.mariecurie.org.uk/
Marie Curie Nurses provide free end-of-life care to people with terminal illnesses in their own homes, or in Marie Curie Hospices.

www.mcpcil.org.uk  
website of the Marie Curie Palliative Care Institute Liverpool

http://www.mylearningspace.me.uk/moodle/ 
The National Cancer Intelligence Network (NCIN) e-learning hub. Understanding Cancer e-learning modules and also archived material from the East Midlands Cancer Network on cancer / End of life e-learning and evaluation toolkit.

N
www.nccn.org  
The National Comprehensive Cancer Network® (NCCN®), a not-for-profit alliance of 25 of the world's leading cancer centers devoted to patient care, research, and education, is dedicated to improving the quality, effectiveness, and efficiency of cancer care so that patients can live better lives. 

www.ncpc.org.uk  
The National Council for Palliative Care (NCPC) is the umbrella charity for all those involved in palliative, end of life and hospice care in England, Wales and Northern Ireland.

www.nice.org.uk 
The National Institute for Health and Care Excellence (NICE) provides national guidance and advice to improve health and social care.

www.neptunesociety.com/resources/preparing-for-the-death-of-a-terminally-ill-loved-one
This guide discusses what symptoms you should be prepared to see in your loved one, what kinds of emotions the situation might stir up in yourself or your family, and how to support your family during this difficult time. Also included are tips on how to approach the topic of a loved one's illness with young children.

O
http://www3.open.ac.uk/study/undergraduate/course/k260.htm 
This module will be of interest for anyone who works with dying people and their families or students who want to find out more about death, dying and bereavement, and what these mean in different contexts.

https://www.gov.uk/government/uploads/system/uploads/attachment_data/file/323188/One_chance_to_get_it_right.pdf 
This document has been developed by the Leadership Alliance for the Care of Dying People (LACDP), which was established following an independent review of the Liverpool Care Pathway for the Dying Patient (LCP). T

P
www.pallcare.info 
Palliative Care Matters is a website intended for health-care professionals working in palliative care or related fields.

http://www.palliativecareinpractice.nes.scot.nhs.uk/
This site aims to support health and care workers to develop their knowledge and understanding of two key areas of practice: principles of palliative and end of life care and advance care planning.

www.palliativedrugs.com  
Palliativedrugs.com provides essential independent information for health professionals about drugs used in palliative and hospice care. It includes unauthorized indications and routes, and details about the administration of multiple drugs by continuous subcutaneous infusion. 

R
http://www.rcgp.org.uk/  
The professional membership body and guardian of standards for family doctors in the UK, working to promote excellence in primary healthcare.

S
http://www.scie.org.uk/publications/elearning/dementia/ 
The Open Dementia elearning Programme is aimed at anyone who comes into contact with someone with dementia and provides a general introduction to the disease and the experience of living with dementia.

http://www.stjh.org.uk/about-us/resource-library
St Joseph's Hospice resource library. Includes referral guidelines, symptom control guidelines and patient information. 

W  

www.who.int/cancer/palliative 
World Health Organization Cancer programme across the world.

 

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